Search For "rare diseases"
For the first time, 'Made in India' drugs launched for rare diseases
Updated : 9 hours, 10 min ago IST
"This is a revolutionary change with a huge cost difference. If a drug is costing 2.5 crore then in India it will cost 2.5 lakh," sources said.
Read More
Study sheds more light on advances, challenges in gene therapy for rare di
Updated : 1 week, 3 days ago IST
A recent review article Therapy summarises major milestones in the development of gene therapy medical products that have aided in the treatment of a large number of uncommon disorders. The essay also discusses the obstacles to the advancement of gene therapy for rare disorders.
Read More
Network-based techniques provide innovative avenues to classify, treat rar
Updated : 2 months, 3 weeks ago IST
Researchers used a network-based approach to reclassify around 200 uncommon disorders. Initial comparisons with clinical data show how this can improve therapy efficacy prediction.
Read More
Better regulatory mechanism and patient registry; a must for rare disease
Updated : 4 months, 3 weeks ago IST
New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the hea
Read More
Public Health Initiatives by Takeda to strengthen health system for rare d
Updated : 6 months, 1 week ago IST
New Delhi [India], May 18 (ANI/NewsVoir): Takeda Biopharmaceuticals India Private Limited (formerly known as Baxalta Bioscience India Private Limited), a global values-based, R&D-driven biopharmaceutical leader conducted dissemination of its public health initiatives in strengthening the
Read More
Centre releases Rs 40 cr for treatment of rare diseases, AIIMS gets Rs 10
Updated : 6 months, 2 weeks ago IST
A short affidavit was filed on behalf of the Ministry of Health in the batch of Petitions filed by children Suffering from Rare diseases who sought direction for free treatment. Justice Prathiba M Singh said, "The ongoing treatment of the children should not be stopped due to funds."
Read More
Expert team of 24 doctors providing the best Superspeciality Healthcare in
Updated : 6 months, 2 weeks ago IST
Vadodara (Gujarat) [India], May 8 (ANI/SRV): Aadicura Superspeciality Hospital, the top multispeciality hospital in Vadodara, is proud to announce its team of 24 expert doctors who specialize in a wide range of super speciality fields and is dedicated to providing top-notch healthcare servic
Read More
Delhi HC summons Union Health Secretary over non-compliance of orders
Updated : 6 months, 3 weeks ago IST
Justice Prathiba M Singh said in the order issued on May 3, "On 15th February 2023, a further amount of Rs 5 crore was directed to be released by the Ministry of Health and Family Welfare. The said direction was reiterated in an order dated 6th March 2023. However, the said amount has not be
Read More
Delhi HC issues notice on pleas seeking free treatment for children suffer
Updated : 7 months, 2 weeks ago IST
The Delhi High Court on Tuesday issued notice to the Central Government and All India Institute of Medical Science (AIIMS) on a fresh batch of petitions moved on behalf of children suffering from rare diseases.
Read More
Govt exempts import duty on drugs used for treatment of rare diseases
Updated : 7 months, 4 weeks ago IST
The central has fully exempted basic customs duty on the import of all drugs and food for special medical purposes and for personal use for the treatment of rare diseases.
Read More
Do rare Diseases account for the economic burden on India?
Updated : 8 months, 1 week ago IST
New Delhi [India], March 18 (ANI/GPRC): The meaning of the term "Rare" is "not occur very often", but rare diseases are cumulatively not so rare anymore. WHO refers to the rare disease as an often debilitating life-long disease or disorder with a prevalence of 1 or less per 1000 population.
Read More
Delhi HC directs to hold meeting on issue of funding of clinical trial for
Updated : 8 months, 3 weeks ago IST
The High court also sought a status report from AIIMS on the treatment of children suffering from rare diseases.
Read More